t i m e

Time heals all wounds, except for this one
As time goes by, I feel more empty
The longer you’re gone, the more my heart aches
The longer you’re gone, the harder this is to take
Time isn’t on my side this time around
The longer I have to miss you, the harder it is to remember your familiar sound
I miss the scent of your white cotton shirt and the warmth of your chest as I lie my head to the sound of your beating heart
Your heart that no longer beats is now just a memory
Time can’t heal this wound
Time can’t give you back to me

Lost

I feel sick to my stomach and faint of heart
I think of what I’ve lost
I wonder how I’ve kept from completely falling apart
Life is a journey
For some, that journey is hard and cold
Every time I seem to get warm, it starts to snow
Some people are gone due to death taking it’s toll
Some people are gone due to life’s changing roles
Whether taken from the earth, or just from my life, you remain forever in my heart
Whether you are floating in heaven, or walking in a nearby park
If I don’t have you, then I think of what I’ve lost

Fiery Sign

As I look into the night sky,
I think of you.
Are the Heavens up above?
Is it just endless blue?
I ask, if you can hear me, to summon a shooting star
to shoot across the night sky, so that I know that you can hear me from afar.
Looking up, hopeful, I wait for my fiery sign;
but, to my disappointment, nothing catches my eye.
If you could hear me, my sweet father, I know you’d show me a sign.
In this moment, yet again I wonder, if there is an after life.

I’ve always believed in the supernatural. I’ve never seen a spirit, but I’ve believed those who say they have. Psychics who can talk to the dead seem convincing, knowing things that seem to prove their authenticity.

I’ve never felt more alone in my entire life. I always viewed the afterlife as, in some way, overlapping life here on earth. Up until now, I’ve never felt so confined. For the first time since my dad’s death, I’m actually realizing that he’s gone. He is actually gone.

I’ve cried until my insides ached. I have begged my dad to let me know he is okay. I’ve begged him to show me a sign, to flicker a light, to say something.. but he hasn’t. I’ve asked God why; why do other people claim to have seen loved ones, talk with them, feel their hands around them, and I get nothing? My dad was ALWAYS there when I needed him, but not now. I begged and begged with the deepest parts of me; I told my dad that I needed to know that he is okay. If he heard me and saw my pain, why couldn’t he show me? I know if he heard me, and was able, that he would. If others can have closure, why can’t I? Is everyone else just lying to themselves as a coping mechanism? Can the dead really communicate with us? I don’t know. All I know is that my dad is gone and I’m not okay.

My mind no longer sees earth and ‘Heaven’ as connected. I see an impenetrable wall around everything that I know. I feel closed off and scared. Death stole my father and I don’t know where it took him. The past twenty-four years of my life, I’ve had my dad. Suddenly, I’m supposed to just be okay without him? I’m supposed to just accept that he’s gone with no explanation as to where he went? I’m supposed to accept that other people have talked to or seen their passed loved ones, but I haven’t? Call me selfish, but I need to have that same experience. If I can’t know that my dad is okay, then no one else should be able to have the comfort of knowing their loved ones are okay. Screw that and screw everyone else.

Until I have answers, and proof, then I’m going to be angry. I’m angry that this life is so cruel and it doesn’t get any better. We are all going to die in the end, but to go where? To just disappear? We spend our life being the best we can, raising a family, comforting friends, being charitable, making memories, spreading love, creating an identity for ourselves. How can losing the last bit of air in our lungs just take all of that away? Our body is merely a shell for everything that lies within us, so where do we go? Where does the deepest and most beautiful parts of us go? I can’t make myself believe that we just disappear into nothing. My father can’t just vanish; he meant too much to just go away forever.

How am I supposed to be okay without knowing that he is okay?

The afterlife stole my father;

My father passed away on December 1, 2015 at 1:38pm only a moment after I had read “My sweet father,” aloud; my mother was holding his left hand, and I was holding his right. He went peacefully with the two people who meant the most to him, his “girls.”

Over a week later.. This still isn’t real. I built a very strong emotional wall while caring for my father the last month and a half of his life; I had to focus 100% on his needs and had no time or energy to deal with my emotions on the matter. That wall is refusing to come down. Saying “your father is dead” is no different than saying “the sky is purple;” it isn’t real. I don’t believe you. My dad can’t be dead, because I’m only 24. I need him. He has to give the guy of my dreams permission to ask my hand in marriage. He has to walk me down the isle. He has to see me graduate from college. He has to see me be successful. He has to remind me to rotate my tires and change fluids that I don’t even know exist. He has to meet his future grandchild. He has to tell me that he loves me and that he’s proud of me. He has to fuss at me for being stubborn. He has to tell me not to get anymore tattoos. He has too much left to do.. He can’t be gone.

I need you, daddy.

My sweet father,

When words have lost their meaning,
When the light can no longer reach your eyes,
I hope you know that I am with you;
I hope you know that I have never left your side.

Mother Nature has mourned your passing;
Rain has fallen for days.
The sun is hidden behind a thick sheet of clouds.
She refuses to smile; she will not show her rays.

When God has made your final arrangements,
He will lift you up in his gentle hands.
My sweet father, you’ll no longer be in pain.
You will find happiness and peace in a magical far off land.

One day, we will be together again;
Until then, know that I love you with every fiber of my being.
You are not only my father, but also my best friend.
You will always be a part of me;
Our bond will never end.

Update 11/28/15-11/29/15

Yesterday, my¬† dad would barely open his eyes. He ate a little, as long as it was soft (pudding, applesauce, mashed potatoes). He drank quite a bit. His blood sugar stayed very low, so my mother and I gave him sugared soda to keep it up. He was clammy for most of the day and his body temperature felt cold to the touch. He had many hand tremors that would sometimes spread to his face. His hands stayed busy for a majority of the day: rubbing his face, scratching his head, touching his lips, feeling the blanket. Vocally, he wasn’t very responsive; he could muster out “yeah” or “no” most of the time when asked a question. My mom and I got a smile and a laugh out of him once when we were telling him how handsome he is. During the evening, he kept reaching his hand out like he saw someone standing at the foot of his bed; my mom and I asked him several times, “Who do you see? Who are you reaching for?” but he could never respond. All day, he seemed peaceful, but very busy at the same time. I believe there’s a lot going on in his mind that I can’t comprehend. From what I’ve read online and from talking to the hospice nurse, this is a time of transition for him; his soul is between his physical body and the afterlife. Maybe he’s seeing passed loved ones waiting for him on the other side, or maybe angels or messengers are talking to him about what’s happening. All that I know is, what he has in the physical world is no longer of much importance to him. As much as I want him to open his eyes and tell me that he loves me too, I’m afraid he will never be able to do that again.

Today, my dad hasn’t opened his eyes at all, nor will he eat or drink. He has woken a few times earlier in the day, but only for a brief moment. He is less responsive than yesterday. His nurse stopped by this morning to take a look at him; all of his vitals are good. She told us that if he doesn’t want to eat or drink, don’t force it. If he needs something, he will let us know. Usually when I go over to his bed to hug and kiss him, he will wake up and I can tell that he knows I’m there; a few moments previous to writing this, my presence no longer woke him up.

Dementia is a roller coaster of a disease; one day, someone can be alert and understand what’s going on around them, but that can quickly change. Every day, even every hour, can be different from the last. In my dad’s case, I don’t think he will have anymore good days. From the signs he is showing, his body is trying to shut down. This process is different for every person; sometimes it takes days, and sometimes it takes weeks. It’s important for my mother and I to stay with him so he knows he isn’t alone. It’s important for us to tell him we love him, even though he can’t respond. It’s important for me to thank him for being a wonderful father and letting him know how important he is to me. It’s important to me that he leaves this earth feeling as admired as a king.

 

If you find yourself taking care of someone who is ill and/or dying, these tips may help you:

If pills become too hard to swallow, don’t buy a plastic pill crusher because they are more trouble than they are worth. Order a mortar and pestle (I got mine off of Amazon for cheap with free shipping) and your pills will be completely in powder form.

If blood sugar is low and needs to be quickly brought up without food, a sugared cola with a couple tablespoons of simple syrup works wonderfully. Glucose tablets can also be crushed up and put in a sweet drink.

If the person who is sick will not open their mouth to eat or drink, try gently touching the straw or spoon to their lip so they can sense that something is there.

While taking care of someone who is ill, to avoid getting them anxious or upset, talk them through everything that you are doing; while changing their diaper, tell them every step as you are doing it. When feeding, always say “here’s a bite/drink” before putting the spoon or straw up to their mouth. Even if they can’t comprehend what you’re saying, a familiar voice may be comforting.

Never argue or debate. Never.

Try to avoid showing any negative emotions in your voice if at all possible, whether it be anger or sadness. Talk slowly and gently.

As blood flow slows down, a person is more likely to get cold; make sure you keep enough blankets around.

If something isn’t absolutely necessary, don’t do it. It puts more work on yourself and adds to their level of discomfort.

Don’t hesitate to call your hospice nurse, home health nurse, primary care doctor, on-call nurse line, etc. If you are every scared or have a question, that is what those people are there for. This is a scary time, but being informed can make it a lot less scary.