Fiery Sign

As I look into the night sky,
I think of you.
Are the Heavens up above?
Is it just endless blue?
I ask, if you can hear me, to summon a shooting star
to shoot across the night sky, so that I know that you can hear me from afar.
Looking up, hopeful, I wait for my fiery sign;
but, to my disappointment, nothing catches my eye.
If you could hear me, my sweet father, I know you’d show me a sign.
In this moment, yet again I wonder, if there is an after life.

Advertisements

Electric Soul

One windy afternoon, as the clouds were swirling above, you walked by; my eyes caught a glimpse of your red sweater just before they caught a glimpse of your soul. Looking ahead, carelessly checking your phone, I wasn’t a part of your reality. I, a stranger, just a blur on the street corner, no different than anyone else around us. To me, in that moment, time stood still; the way your cheeks scrunched up when you smiled at your phone, the way you brushed your hand through your golden hair, and how each step you made seemed so flawlessly planned out. I found myself longing to know you, all while you lived unknowing of my existence. Weeks later, drinking a coffee, I found myself thinking of you, wondering of your well-being, hoping that one day we would cross paths again. Until that fortunate day, I will quietly smile as I think of you, a beautiful stranger with an electric soul. Sadly, I am no where in your mind, let alone your heart. In your life, my love that I would so gladly share with you, doesn’t exist.

Update 11/27/15

It’s approaching midnight, and my eyes are heavy from crying. My dad has slept all day today, being woken every couple hours to see if he will eat or drink. He won’t eat, but he will drink some. He always wants to eat, so this is new; this is scary.

Today was the beginning of his hospice care; my mother and I sat down with his new nurse and learned about the program and how they are different from home health. Hospice is a lot more help, in all aspects; my father’s care now focuses on making sure he is comfortable, rather than trying to heal him (because he’s past that point). His medications were changed around, as most the ones he took no longer do him any good; pain medication and a mood stabilizer (for anxiety and agitation) were added. A nurse will be available for use 24/7 if needed, but otherwise, one will come by the house a couple times a week. A bath aide will also be here several times a week to help my mother and I. There are also social workers, volunteers, and chaplains available for us to use. Hospice provides physical, mental, emotional, and spiritual support for the patient and for the family.

As for my father, his new nurse said that we will be able to tell a lot within the next few days. If he wakes up tomorrow and is willing to eat and drink, then wonderful. If not, then we need to prepare ourselves for the worst. It could be just a bad couple of days, but then it could also be nearing the end. With this disease, it’s hard to tell; every day can be drastically different.

My father hasn’t been as responsive as usual today; out of the twenty times I’ve told him “I love you,” he may have responded twice. His eyes stayed closed even when taking a drink or feeling my hand on his face. He’s coughing and has a rattle in the back of his throat. His hands shake and he fiddles with the covers around him. His blood sugar has been low all day, whereas it’s usually high; tonight is the first night in years that we haven’t given him insulin.

I pray that he is peaceful and not in pain. I pray that he knows how much my mother and I love him. I am overwhelmed with emotions ranging from sad to angry; I’m not prepared to lose my father and I’m angry that I’m going through this. I’m angry that my mother is going through this. I’m angry that my father has to end his life in this condition. No one should have to go through this. Losing parts of a loved one day after day is a terrible sadness and requires a lot of strength.

I hope and pray that tomorrow will bring my sweet daddy a better day. I hope I can see his beautiful eyes and radiant smile and hear his contagious laugh. I always pray that he continues to know who me and my mother are.

I will update tomorrow on his condition. Thanks to everyone who has kept my family in your thoughts and prayers. If you are in need of prayers, please comment on this post and I will keep you in my thoughts.

Thanksgiving

As I’m sitting here with my sleeping father, the smells coming out of the kitchen are almost too much for me to bear. This Thanksgiving, it’s just my father, my mother, and myself. Although I’d prefer a full house full of those that are close to my heart, I’m thankful that I can spend this holiday with my father. Does he understand that today is a holiday? I’m not sure. I am sure that he knows how loved he is and that my mom and I are always right here.

My dad woke up in a good mood today, although he isn’t feeling the best (he’s recovering from some sort of respiratory infection). He’s always very cooperative when I give him a bath and change his bedding. If you’ve ever bathed, dressed, and changed linens on someone completely bed ridden, you know how difficult it can be. When he is able to help turn himself, it makes my job a lot easier.

He ate a good breakfast of whole wheat pita, spread with peanut butter, and a side of lightly salted tomatoes. He loves to drink milk or apple juice with his breakfast; unsweetened tea, grape juice, sugar free fruit punch, and the occasional Coke Zero are his favorites throughout the day. On rare days, he is able to give himself something to drink and feed himself small handheld snacks. I know that him being able to do something for himself makes him feel proud, so I always encourage him. If someone is able to do something for themselves, even slowly, let them. Let them hold onto what independence they have.

This Thanksgiving, I will be enjoying my meal standing by my fathers bed while I feed him. I’m thankful that my mom feels up to cooking today, as she’s been recovering from surgery. I’m thankful that I can spend this holiday with my dad, because I don’t know how many more we have together. I’m thankful to have plenty of food to eat (delicious food, at that). I’m also thankful that my mom makes sure to prepare everything vegetarian so I can enjoy it all (except the turkey, cluck cluck). Today, I am just thankful. Although, I wish I had a big loving family, I don’t; I have a small loving one that is unconditional, and they mean the world to me.

I encourage us all to focus on the positives in our life, not only today, but every day. If we focus on the negatives (which can often be overwhelming in my life), then we are only going to bring ourselves down. Find something, or someone, that gives you hope for a better tomorrow and hold onto whatever that may be. Appreciate and love the ones around you, because you never know how much a simple gesture can mean to someone. Reach out to someone and let them know that you care. Smile at a stranger. Take a deep breath and be thankful for everything that you have lost because what’s lost has given you what you have today; what we have today is the only thing that we know for sure, so be grateful. Be grateful for today and hopeful for tomorrow.