In this life, LOVE is most important.

I am sitting by my father’s bed listening to his labored breathing. His vitals are no longer good; his heart is working over time, he’s feverish, clammy. He can’t eat or drink. He hasn’t opened his eyes at all. His nurse said he has a couple days, no more than a week. My mother and I are giving him morphine around the clock so he remains comfortable.

A chaplain stopped by today to talk with me and my mom; we all stood and prayed over my dad’s bed.

I’ve learned a lot about life the past month that I’ve been home with my father. I’ve learned who cares about me and who doesn’t. I’ve learned to make sure I let my emotions out in a healthy way. Mostly, I’ve learned what’s important in this life: love. As my father is lying here dying, the only thing I can give him is my love. I can no longer feed him, give him a drink, bathe him, talk with him, laugh with him, or even watch TV with him. All he can accept from me at this point is my unconditional love for him. I could be offered a million dollars to leave his side, and I wouldn’t.

Watching a parent die, especially being as young as I am, is one of the hardest things I’ll ever go through. Dementia has stolen everything from him over this past year; the father that I grew up knowing has been gone a long time. I feel so many emotions. I’m sad that I’m losing my father. I’m angry, very angry, that I’m losing my father. I’m thankful that I’ve had him in my life this long, but I hate that I won’t have him longer. I’m anxious. I’m nervous. I don’t want him to stay in pain, but I also don’t want to let go. If I ever get married, he won’t be there to walk me down the isle. He won’t be at my college graduation. I won’t be able to give him a grandchild. He can’t answer questions I have about my car. He won’t be able to make sure the first house I buy is in good shape. He won’t be able to do any of the things that I need from him. The most terrifying of all is that he can’t ever tell me that he loves me again.

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Update 11/27/15

It’s approaching midnight, and my eyes are heavy from crying. My dad has slept all day today, being woken every couple hours to see if he will eat or drink. He won’t eat, but he will drink some. He always wants to eat, so this is new; this is scary.

Today was the beginning of his hospice care; my mother and I sat down with his new nurse and learned about the program and how they are different from home health. Hospice is a lot more help, in all aspects; my father’s care now focuses on making sure he is comfortable, rather than trying to heal him (because he’s past that point). His medications were changed around, as most the ones he took no longer do him any good; pain medication and a mood stabilizer (for anxiety and agitation) were added. A nurse will be available for use 24/7 if needed, but otherwise, one will come by the house a couple times a week. A bath aide will also be here several times a week to help my mother and I. There are also social workers, volunteers, and chaplains available for us to use. Hospice provides physical, mental, emotional, and spiritual support for the patient and for the family.

As for my father, his new nurse said that we will be able to tell a lot within the next few days. If he wakes up tomorrow and is willing to eat and drink, then wonderful. If not, then we need to prepare ourselves for the worst. It could be just a bad couple of days, but then it could also be nearing the end. With this disease, it’s hard to tell; every day can be drastically different.

My father hasn’t been as responsive as usual today; out of the twenty times I’ve told him “I love you,” he may have responded twice. His eyes stayed closed even when taking a drink or feeling my hand on his face. He’s coughing and has a rattle in the back of his throat. His hands shake and he fiddles with the covers around him. His blood sugar has been low all day, whereas it’s usually high; tonight is the first night in years that we haven’t given him insulin.

I pray that he is peaceful and not in pain. I pray that he knows how much my mother and I love him. I am overwhelmed with emotions ranging from sad to angry; I’m not prepared to lose my father and I’m angry that I’m going through this. I’m angry that my mother is going through this. I’m angry that my father has to end his life in this condition. No one should have to go through this. Losing parts of a loved one day after day is a terrible sadness and requires a lot of strength.

I hope and pray that tomorrow will bring my sweet daddy a better day. I hope I can see his beautiful eyes and radiant smile and hear his contagious laugh. I always pray that he continues to know who me and my mother are.

I will update tomorrow on his condition. Thanks to everyone who has kept my family in your thoughts and prayers. If you are in need of prayers, please comment on this post and I will keep you in my thoughts.

Reaching Out A Hand For Help

As of recent, my life has took a turn towards my worst fear: my father getting old and sick.

I am twenty-three years old; my parents have been together for over thirty years. My mother is twenty-five years younger than my dad; my mom is fifty-three and my dad is seventy-eight. Growing up, my dad was not young and playful like all of the other dads I saw with my friends. He was in the prime of his business career, busy working in the garage, always running about- things any healthy fifty-something-year-old would enjoy doing. Up until less than a year ago, my father has had no significant health issues; he was still active, his mind was sharp. Then, all of the sudden.. things changed. Things changed drastically. My mother and I, scared and confused, avoided showing any fear. My father, for a long time, denied anything was wrong. The reality of the situation was obvious to everyone except for him.

My worst fear, as a child and as an adult, was this happening. It was seeing my dad go downhill. It was seeing him using a cane or a walker. It was seeing him forget how to form sentences. It was seeing him forget things that he has always known. It was seeing him forget how to add up money to pay the cashier. It was seeing him lose the ability to drive. It was seeing him in diapers. It was seeing him old.

I am reaching out for help. Tons of adults face going through this with one or both of their parents, just not at my age. In the beginning of my adult life, trying to figure out who I am and make my place in the world, I just cannot seem to grasp what is happening. I need more time to pass before I can deal with this, but sadly, I do not have time on my side. Anyone, regardless of age (although it would be nice to communicate with someone around my age about this), please.. let me know how to cope. Give me tips on how to process this. Help me accept this as reality. Any kind words, stories, advice, prayers, thoughts, etc. are more than welcome.

Thank you.